Hi, I am writing on behalf of a friend of mine who does not
have access to a PC. She believes that her child has Pierre Rodin
Sydrome and is looking for information and assistance. Basically
what she is looking for is an address she can write to for more
information on PRS (she has talked to various Doctors who have
very little information on the subject and she'd like to learn
more). She'd also like to know of anyone else in Ireland with PRS
that she can talk to and discuss it. I'd appreciate any help
anyone could give her. Regards, Dave Cullinane (gull@clubi.ie)