my daughter julia was born 9-3-98. i had a normal pregnancy
and delivery. right away my ob noticed she had a cleft palate.
doctors came from the nicu and looked at her and explained to my
husband and i what we had to face in the coming months. they did
not see any other problems so they sent us on to the maternity
ward. there i noticed she was having a very difficult time with
breathing. i mentioned it a few times and they would take her
away and check her pulse ox. it was normal the first 2 times
until the 3rd one and they noticed she was changing color so they
sent her down to the nicu. there she had more problems. she was
diagnosed with the pierre robin syndrom. was on oxygen for a few
days and during feeds when she came home. our pediatrician
advised us to put her on a home monitor while she is sleeping and
aslo lay her on her belly as much as possible. when we diapered
we also moved as quickly as possble. now she is 5 months old and
has been taken off the monitor and oxygen. she is doing
wonderful. sometimes in her crib we find her sleeping on her back
with no breathing problems. we even let her play that way. in
time things have become so much better. they just need to grow
some and gain control of their own body. if you have anymore
questions or concerns you can email me.
lmo1118@aol.com