Pierre Robin Syndrome

Children and adults with cleft lip and/or palate issues

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Pierre Robin Syndrome

Postby Bernadette Castro » Fri May 21, 2004 5:08 pm

I'm a mother who's daughter is going to be two years old next month. Sara was born with pierre robin syndrome, together with craniosynosotis. I have so much information and hope that I can share with you my experience, if you are a parent struggling, as I was with this syndrome.
YOu can email me at bernielgl@netscape.net
Bernadette Castro
 

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