I have written before and I am still looking for some help- I
find all kinds of information on children tht were born with a
cleft lip or pallett that was detected right away. I have been
batteling with this for twelve months and they are just know
telling me it MAY be a submucous cleft- can anyone tell me if you
have been through this and what do I do if it is - His history is
that he came home 81b 9 oz and was eating 5-6 oz of breast milk
at a time at 2 months old he had a severe flu- he dropped to 2 oz
and still will not drink anymore than 5 oz at a time - he can not
eat any solids because he gags until he vomits and it is violent.
up his nose and he almost chokes. he has been to several doctors
and they all said be patient - Well he is 12 and 2weeks old and
still not eating any food - formula only. Does this sound like
anything anyone here has been through if so - please email me at
Jestco@insolwwb.net -