Piere-Robin Syndrome Son

[db4113@dragonbbs.com]

I have a 4 year old son with Piere-Robin Syndrome and has had
cleft palete repair. If anyone is wanting any info. on anything,
Please let me know. I've been through alot with my son and would
love to help anyone I can, anyway I can. I still the BIG surgery
to go through, anyone who is willing to share info. on that one,
it would be great. db4113@dragonbbs.com

[rprtransport@aol.com]

ON AUGUST 7TH MY DAUGHTER WAS BORN WITH A CLEFT PALLET AND PIERRE ROBIN. SHE HAD SURGERY WHEN SHE WAS 7 DAYS OLD[THE TONGE LIP ADHESION

[irismaria2@aol.com]

Hi my name is marylin and my second son Gabriel was born with a cleft lip and pallet. He just turned a year old on the 4th of April. He's had his lip repaired but recently on May 8th 02 he had his pallet repaired it was a little more eventful than the lip repair, but Gabe handled it very well. On the third day he bagan to eat. I don't know how much help it gave you but I would love to hear from you I have no one eith these things in common.