I have a 4 year old son with Pierre Robin. He does not have a
cleft palate but has very severe micrognathia as well as several
other more minor 'differences' such as microstomia and possibly
microglossia. I've been searching for info on the micrognathia
(small jaw) and microglossia (small tongue). Does anyone know of
any resources? Also, I would love to link up with other parents
of children with similar problems. This site appears primarily
related to cleft lip and palate. Are there any more appropriate
sites out there? I can be contacted at Sandlos@golden.net