by mellyott » Mon Jan 07, 2008 4:33 pm
My daughter had her surgery Dec. 20. The surgery was shorter than expected. (We were not told ahead of time she would still have a small hole behind her teeth, so be prepared for that.) It was rough at first, she wouldn't eat or drink anything. After two days we were ok to go home, she was doing fine without the IV finally. She was a miracle. She was back to herself quite quickly. She would wake up in the middle of the night crying, but go right back to sleep, I think because she was uncomfortable and couldn't suck her thumb. She slept her usual 10-12 hours after two nights at home. She took two 2-3 hour naps a day. Eating was a challenge only because she was picky, she basically lived on yogurt and milk from a syringe. After a while she would drink from her Nuby cup. She was smiling and talking, laughing and playing like usual before we even got home from the hospital. We weren't home bound as expected. I hope this gives some of you encouragement. We were expecting the worst, and overall everything went well. It has now been 2 1/2 weeks and she has been cleared by the dr. she can sleep in her bed and take off the arm splints YAY! (We only used the arm splints when she slept, she was very good about keeping things out of her mouth.)