Mom with son with cleft lip and palate

Children and adults with cleft lip and/or palate issues

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Mom with son with cleft lip and palate

Postby queensheets@netzero.net » Tue Apr 20, 1999 6:45 pm

I would like to help any parent or grandparent or friends of
someone with a cleft palate and lip. I am willing to share our
expereance with you. All of our scary moments, our hurting
one(because our first child wasn't perfect)oh but he is and was
now that we look back. THis birth defect affects everyone that
comes in contact with the child. I had people glare at me when my
son was in arm restrants after a surgery because they thought I
hurt him. I have had people tell me how cute he is and others
turn away from him. I know the hurt and anger that comes with all
of this. I am willing to talk and listen because I know I have
been there. Please send me a e mail and I will answer question
the best that I can. It really helps to have someone that knows
how you feel and I do.God Bless you all
queensheets@netzero.net
 

Re: Mom with son with cleft lip and palate

Postby cbtalk2u » Sat Apr 24, 1999 7:43 pm

shriners hospital in springfield mass has a support group
which meets next end of june for more info call shriners 7872000
family service dept or e mail me if interested do not have to be
a patient at shriners to come ....
cbtalk2u
 


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