Crouzon's Syndrome

[jseale@tyler.net]

Can you tell me where I might find articles on the above noted
syndrome? I have searched the web and found very very little.
Perhpas I don't know how to use your website - I see articles,
but when I click on them Ido not get an actual article. Any help
will be appreciated.

[Robyn J <robyn@ordata.]

for info on Crouzons - type in crouzon or FGFR2 into your
search engine. Also excite search engine has a lot of posts. Good
luck!

[Anonymous]

[mother of a girl with cro]

there is an organization called the Craniofacial
Foundation of America located in Chattanooga TN
They have been of much assistance to us as a whole
family. Dr.Larry Sargent is a very brillant and talented
man who has done wonders with my child. I trust him very much.
He has written a very informational book that is a
available to parents of children with facial differences.
there number is 1-800-418-3223

[jl233@email.byu.edu]

There are not many resources on Crouzon's, but there are more & more all the time. One helpful resource is the Crouzon Support Network: www.crouzon.org. Another helpful resource is FACES: www.faces-cranio.org. I have Crouzon's, so if you have any specific questions that you have not had answered, you may e-mail me.

[Mighty_Bass@webtv.net]

I am a 30 year old male and an expecting father. I have Twin Sisters<female> who have lived with crouzon"s syndrome for the past 24 years. They have mental retardation and some mild physical abnormalities<since their reconstructive surgery on their skull at their time of birth> . If you would like to talk any further...please contact me at my web address. Todd Lilley

[Mighty_Bass@webtv.net]

I am a 30 year old male and an expecting father. I have Twin Sisters<female> who have lived with crouzon"s syndrome for the past 24 years. They have mental retardation and some mild physical abnormalities<since their reconstructive surgery on their skull at their time of birth> . If you would like to talk any further...please contact me at my web address. Todd Lilley