Since no one has answered yet, I'll try to help out with what I can
![Smile :)](./images/smilies/icon_smile.gif)
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I don't have any personal experience with pierre robin, and wasn't able to find out much about the tongue lip adhesion on the internet but you might be able to join the Pierre Robin Network at <a href="http://www.pierrerobin.org/">http://www.pierrerobin.org/</a> and ask in their message board and mailing list.
Kim, The Cleft Club, <a href="http://cleftclub.cjb.net">http://cleftclub.cjb.net</a>