STICKLERS SYNDROME

[VICTORIA]

NEED ANY INFORMATION AVALABLE.

[BARB DOLKENS ADELAIDE AUS]

I AM 25 Y.O AND I HAVE A 10 WEEK OLD DAUGHTER ,BOTH OF US WITH
STICKLERS SYNDROME. WE BOTH HAVE CLEFT PALATE (PRS),MYOPIA,JOINT
HYPERMOBILITY,RETINAL DEGENERATION,AND FLAT NASAL BRIDGE.I LEAD A
PERFECTLY NORMAL, ACTIVE LIFE.I DO HAVE TO BE WARY OF THE
CONDITION OF MY EYES HOWEVER I HAVE NO RESTRICTION IN THE
ACTIVITIES I DO. THERE SEEMS TO BE ALOT OF PEOPLE OUT THERE WHO
ARE GROSSLY AFFECTED BUT IT DOESN'T ALWAYS WORK OUT THAT WAY.
GOOD LUCK WITH THINGS. BARB DOLKENS.