STICKLERS SYNDROME

[T. TETLEY]

WE HAVE TWO BOYS 7 AND 8 BOTH WERE BORN WITH PIERRE ROBIN AND
STICKLERS SYNDROME. WE WOULD REALLY LIKE TO HEAR FROM OTHERS WITH
THESE .BOTH BOYS HAVE LOTS OF JIONT PAIN, OUR YOUNGEST SON HAD
HIS JEA SURGICALLY BROUGHT FORWARD LAST YEAR(ALTHOUGH IT STILL
HASN'T GROWN SINCE)PLEASE FEEL FREE TO EMAIL US AT
littlebear@bc.sympatico.ca

[Cindy H.]

Hi. I am not personally dealing with Sticklers , but I do know
some people who are- friends of mine from another list. There is
a webpage for Stickler Involved People. You can go to it at



<a href="http://www.stickler.org">http://www.stickler.org</a>




Good luck. There are also other pages. If you want help, let
me know. E-mail me at CinLou1970@aol.com



Cindy